SMA workshop in Warsaw

Once again, the SMA Foundation welcomes you to Poland with joy and emotion! We are glad that despite the enormous difficulties and dangers, so many of you managed to reach our country. We want your stay, access to treatment, rehabilitation and specialist knowledge to be the best possible. We also …

SMA workshop in Warsaw Read More »

All patients from Ukraine will be able to continue taking Evrysdi

URGENT! All children and adults with SMA coming from Ukraine who have started risdiplam (Evrysdi) treatment will be able to access it also abroad. In Poland, Evrysdi treatment will be available in the following hospitals: Children with SMA: Gdańsk: Uniwersyteckie Centrum Kliniczne, ul. Dębinki 7, 80-952 Gdańsk Łódź: Centrum Zdrowia …

All patients from Ukraine will be able to continue taking Evrysdi Read More »

Problem with treatment in Germany

We have received information from our colleagues at the German organisation Initiative SMA that untreated patients arriving from outside the European Union cannot currently be included in the SMA treatment programme in Germany. We have been asked not to build expectations and to refer urgent cases to countries where treatment …

Problem with treatment in Germany Read More »

Relocation opportunity in Denmark

Muskelsvindfonden, a Danish organisation for neuromuscular diseases, is offering the Ukrainian SMA families a stay at Musholm, a beautiful hotel and sports centre for people with disabilities. The centre is located on the island of Korsør, right on the shores of the North Sea. The organisation will provide accommodation and …

Relocation opportunity in Denmark Read More »