If you are considering moving to the UK, we have great news for you. SMA Foundation Poland and TreatSMA are jointly inviting you to a webinar titled “Living with SMA in the UK”. At the event, families with SMA living in Britain will tell you about how families with SMA […]
Webinar: “Living with SMA in the UK” Read More »
Once again, the SMA Foundation welcomes you to Poland with joy and emotion! We are glad that despite the enormous difficulties and dangers, so many of you managed to reach our country. We want your stay, access to treatment, rehabilitation and specialist knowledge to be the best possible. We also
SMA workshop in Warsaw Read More »
Today, the Sejm has passed a law that will allow full access to public healthcare in Poland for all people who entered Poland from Ukraine following the Russian invasion. The provision applies to all people who crossed the Polish border starting on 24th February 2022. Under these new regulations, all
Families from Ukraine will have full access to SMA treatment in Poland Read More »
Have you come to Poland recently? Have you been living here for some time but you still don’t know how all of it works yet? On Wednesday, we will organise a webinar entitled “Living with SMA in Poland”, during which we will try to answer the most common questions about
“Living with SMA in Poland” – Webinar Read More »
URGENT! All children and adults with SMA coming from Ukraine who have started risdiplam (Evrysdi) treatment will be able to access it also abroad. In Poland, Evrysdi treatment will be available in the following hospitals: Children with SMA: Gdańsk: Uniwersyteckie Centrum Kliniczne, ul. Dębinki 7, 80-952 Gdańsk Łódź: Centrum Zdrowia
All patients from Ukraine will be able to continue taking Evrysdi Read More »
We have received information from our colleagues at the German organisation Initiative SMA that untreated patients arriving from outside the European Union cannot currently be included in the SMA treatment programme in Germany. We have been asked not to build expectations and to refer urgent cases to countries where treatment
Problem with treatment in Germany Read More »
Muskelsvindfonden, a Danish organisation for neuromuscular diseases, is offering the Ukrainian SMA families a stay at Musholm, a beautiful hotel and sports centre for people with disabilities. The centre is located on the island of Korsør, right on the shores of the North Sea. The organisation will provide accommodation and
Relocation opportunity in Denmark Read More »
