Problem with treatment in Germany

We have received information from our colleagues at the German organisation Initiative SMA that untreated patients arriving from outside the European Union cannot currently be included in the SMA treatment programme in Germany. We have been asked not to build expectations and to refer urgent cases to countries where treatment is offered without delay. Please feel free to email the organization directly at [email protected] (in German, English or Russian).

We are in continuous contact with SMA organizations abroad regarding the availability of accommodation and treatment for refugees. Should the situation in Germany change, we will share this immediately.