The Czech Republic is currently accepting refugees from Ukraine. The Czech organization Smáci offers special support to families with SMA.
Transport
SMA Foundation Poland can help you with your trip to the Czech Republic – we can offer train or flight tickets. Sometimes road transport is also possible. Please do not hesitate to contact us.
Formalities
No formalities are required from people fleeing the war in Ukraine to enter Czech Republic.
For air travel, all travellers must hold a photo ID – a Ukrainian ID document or a Ukrainian biometric passport. For children who have only a Ukrainian birth certificate, it is necessary to obtain a citizenship certificate. Citizenship certificates are issued free of charge at Ukrainian consulates, usually on the same day, upon submission of the original birth certificate and a current passport-style photograph of the child.
Accommodation
The organisation Smáci has informed us that it is ready to provide suitable apartments in the vicinity of Prague for families with SMA fleeing Ukraine.
We currently have no information on other forms of accommodation available in the Czech Republic.
SMA treatment
In accordance with the European Union directive, people fleeing the war in Ukraine should have full access to healthcare in the country that has granted them temporary protection. Currently, we do not have confirmed information regarding any restrictions on the access to SMA treatment in the Czech Republic for people from Ukraine.
All SMA patients in Czechia can receive Spinraza treatment as standard. Children with SMA under 3 years of age can also be treated with Zolgensma (gene therapy).
Evrysdi is not yet reimbursed in Czechia.
Social support
In accordance with the European Union directive, people fleeing the war in Ukraine should have full access to social support in the country that has granted them temporary protection. We do not have detailed information about the support tailored to the needs of SMA patients.
SMA community
Smáci (www.smaci.cz), an organization run by people with SMA and parents of children with SMA, operates in the Czech Republic. Contact: [email protected].